A panel discussion highlights issues rare disease patients face - The Daily Guardian
Connect with us

News Plus

A panel discussion highlights issues rare disease patients face

Published

on

The Organization of Rare Diseases India (ORDI) recently presented a session on Rare Diseases on NewsX. There were four power-packed panels of experts that joined in the session that was divided into four segments covering various aspects concerning the topic. The four segments were: Rare Diseases: The Untold & Unheard Saga; Rare Diseases: The Indian Scenario; RaceFor7: Walk/ Run/ Ride; Rare Diseases: Hopes from the government.

RARE DISEASES: THE UNTOLD AND UNHEARD SAGA

Dr Meenakshi Bhatt, Consultant, Clinical Genetics, CHG, Bengaluru kick-started the first segment. Dr Bhatt said, “Rare diseases happen very infrequently in the population. In countries other than ours, there is a definition, sometimes it is defined in certain countries as something that happens less than once in a population of two lakh. In some other countries, there is a definition that one in 2,500 or less of the population is affected by a disease.”

This segment was also joined by Prasanna Shirol, Co-founder & Executive Director, ORDI, Sangeeta Barde, Co-founder Director, ORDI, Lalith S, Director, ORDI & father of kids with Sanfilippo syndrome, Arouba Kabir, Counselor & Mental Health therapist, Dr Sujatha Jagdeesh, Head of Clinical Genetics, Mediscan, Chennai, Dr Ann Agnes Mathew, Pediatric Neurologist, Baptist Hospital, Bangalore, Dr Shubha Phadke, Professor & HOD, Medical Genetics, SGPGI.

RARE DISEASES: THE INDIAN SCENARIO

Giving an introduction of ORDI, Prasanna Shirol, Co-founder & Executive Director, ORDI said in his inaugural address, “ORDI is an umbrella organization which represents 7,000 plus Rare Diseases. We work in the area of advocacy, awareness and patient support.” Shirol’s quest to finding answers to multiple questions in the area of rare diseases led him to find the organization. He struggled through his life as his 22-year-old daughter is India’s first Pompe patient which is a rare genetic and neuromuscular disease.   

Other contributors of this segment of discussion were Dr Sumita Danda, Professor & Head, Department of Clinical Genetics, CMC, Vellore, T.S. Singh Deo, Health Minister, Chhattisgarh, Ashutosh, parent of a child of IEM, Samir Sethi, President at Indian Rett Syndrome Foundation, Dr Sarthak Kamath, MD, Psychiatry and is living with DMD, Vaishali Pai, Occupational Therapist & Founder, Tamahar Trust, Bengaluru, Manjeet Singh, President, LSDSS and he also lost his child to MPS, Dr Ratna Puri, Professor and Chairperson, Institute of Medical Genetics, Sri Ganga Ram Hospital, Dr Sanjeeva G.N., Associate Professor, Pediatrics, IGICH, Bangalore, Anil Raina, General Manager, Sanofi Genzyme, Gitanjali Sehgal, Co-founder, FSMA and is an aunt to an SMA girl and Sunila Thatte, Vice President & Head- R&D Solutions India at IQVIA.

RACEFOR7: WALK/ RUN/ RIDE

Racefor7 is a yearly event that ORDI conducts for the past six years. It symbolically represents the 7,000 rare diseases with 7,000 people running for seven kilometres. Shirol said that it is a mass awareness run/ walk/ ride. He added that it is a unique and largest such program in the world where so many people join to create awareness who are unaffected for causes like rare diseases. This year, this event was held virtually on 28 February.

Segment 3 panellists were Shirol, Barde, Dr Bhatt, Kabir, Sirisha, OI Warrior, President awardee, Anand Shah, Trustee of PPMD India, Uttam Sahoo, teacher & parent of Progeria child Aditya from Uttarakhand, Dr Suresh Hanagawadi, President, Karnataka Hemophilia Society & Professor of Pathology, JMM Medical College, Davangere, Dr Prakash Gambhir, Chief Medical Scientist, Lifecell & Fetomed, and Thatte.

RARE DISEASES: HOPES FROM THE GOVERNMENT

In the last segment of the session on rare diseases, the panellists shared the challenges that the government perhaps needs to take account of. Taking the same conversation ahead, Dr Puri said, “Being a doctor who has been working half lifetime with patients with rare diseases, I think we deal with a very large population and the priorities from the health administration side are probably different. We see our priorities as the most vital, I do agree with the parent community, they are vital because every child has a right to life but we are moving ahead and I hope that with all this, with the noise that is being created, with the platforms that are coming forward to take the voice and the importance of treating children with rare disorders, we are all waiting for a good rare disease policy.”

The power-packed panel that joined this segment included Shirol, Barde, Dr Bhatt, Dr Puri, Sehgal, Sethi, Dr G.N., Raina, Thatte, Dr Mathew, and Pai.

The Daily Guardian is now on Telegram. Click here to join our channel (@thedailyguardian) and stay updated with the latest headlines.

For the latest news Download The Daily Guardian App.

News Plus

HOW FIXED VS GROWTH MINDSET SHAPES OUR LIVES

IESHAAN PURI

Published

on

What is it that separates achievers from quitters? Is there a certain skill or trait that most successful people have in common? It turns out, there just might be. According to Dr Carol Dweck, there are two mindsets we can navigate life with —growth and fixed. The term mindset is defined as an established set of attitudes held by individuals that help guide their behaviour.

One’s mindset is rooted in their experiences, education, interactions, and culture from which one form thoughts that establish their beliefs and attitudes. Those thoughts, beliefs, and attitudes lead to certain actions and with those actions, they have experiences, and those experiences shape their mindset. It is an indisputable fact that humans evolve with age. Therefore, one’s mindset can alter. 

According to science, our brain can be reshaped over time, forming new neural pathways. These neural pathways are developed by doing or thinking particular things. The things that we do or say more often become hard-wired into our brains as habits. These habits can be defined ‘routes’ in our brain, which become easier to use. But you can still change them. The first step is to realise that you need to, and then train your brain in the new skill. 

An individual with a fixed mindset leads to a desire to look smart and therefore, a tendency to avoid challenges. Consequently, they are unable to achieve their full potential. In an educational environment, individuals with a fixed mindset think that learning and intelligence have limitations, and they cannot grow as students.  On the other hand, an individual with a growth mindset leads to a desire to learn and a resultant tendency to see efforts as the path to mastery. In an educational environment, individuals with a growth mindset think that learning and intelligence are limitless; with hard work, one can acquire skills and learn, and as a result, change their levels of intelligence. Those with a growth mindset are less concerned about their perception, and more focused upon learning. In other words, they yearn to learn. According to Dr Dweck, what makes a growth mindset so winsome is that it creates a passion for learning rather than a hunger for approval. Persons with this mindset are afraid of but not discouraged by failure.  

Nobody ‘purely’ holds a fixed or growth mindset. More often than not, human beings are born with a desire to self-actualise. In an attempt to do so, we adopt a strategy, form a mindset, learn about our surroundings, etc. Sometimes, we are successful, at other times, not there yet. People with a fixed mindset will join their hands, and resign whereas people with a growth mindset will try again. With their second attempt, they will adopt a different strategy and try to hold onto hope. In other words, a skill is something you can cultivate. You can become more creative, more athletic, and even successful by focusing on the process, and not the outcome. It’s the process that is the prize. 

Over the years, my mindset has developed from fixed to growth. As a child, I believed in my abilities only to an extent. If I performed poorly in school, I would disregard the comments made by the teacher or my parents. If I did not score a goal or make an assist in a football game, I would begin to see my efforts as worthless. Only compliments directed towards me or my achievements could get a smile on my face. 

All this changed when I saw a film called Shawshank Redemption. A quote from the film, “I guess it comes down to a simple choice, really. Get busy living or get busy dying” changed my way of thinking. With a fixed mindset, I would not be open to new avenues, instead, be fearful. The film taught me that it is important to go out, find your passion, and be bold. Most importantly, always hold on to hope. 

Over the past year, I set a few short and long term goals: reading a book a month, widening my social circle, and speaking to my teachers to understand where I faltered. We overestimate the importance of a single event and underestimate the importance of making better choices daily. However, it is vital to remember that nobody can develop a mindset overnight. It’s a course of gradual progression. A stimulus must be evoked externally. It is natural to weigh your strengths and weaknesses, doubt your abilities, but what matters the most is your interpretations and the following actions. 

An individual’s true potential is unknown and unmeasurable. Moreover, it’s impossible to forecast what can be accomplished with years of passion, toil, and training. We are a blend of the two mindsets with one more raised than the other. I say this because as we grow older, we experience more things. Both mindsets are two distinct worlds: In one world, the world of fixed traits — success is about proving you’re smart or talented, validating yourself. In the other — the world of changing qualities — it’s about stretching yourself to learn something new, developing yourself. It’s not always about winning or losing, succeeding or failing, loving or hating — nothing is good or bad forever. But, how you emerge out of a crisis or a moment of praise without getting ahead of yourself? It’s the mindset you endorse. 

Today, we are living in a world that is progressing rapidly. Each one of us is grappling with new information, concerns, and so much more. We are constantly receiving approval and rejection. To infiltrate feedbackand act appropriately, being self-aware is vital. Unless, you develop a mindset and believe in it wholeheartedly, your mindset will influence your decisions. Life is a journey filled with highs and lows. Self-motivation is the key and a well-trained mind will help you. A mindset is an interpretative process that teaches us about our surroundings so we must learn to adapt with change and continue to develop our mindset. 

The significance of having a growth mindset is more important now than ever before. When the coronavirus pandemic hit in early 2020, even the best of us were lost on how to combat it. The healthcare industry rose to the challenge, armed with a growth mindset, and developed successful vaccines to inhibit its life-threatening consequences. As children, we did not know what a mindset was, however, we were forming one unconsciously. But, as we grow older and become aware of the term and its significance, we must allow ourselves to live and act consciously by deliberately cultivating a growth mindset.

The writer is a class 12 student from Vasant Valley School. 

Continue Reading

News Plus

COVID-INDUCED CHALLENGES GALORE, ‘YES, WE WILL’ ATTITUDE IS THE CURE

Prime Minister Narendra Modi needs to convert the crisis into an opportunity to create a ‘New India’ of his dream.

G.V. Anshuman Rao

Published

on

“We proved that we are still people capable of doing big things and tackling our biggest challenges,” these were the words of former US President Barack Obama who took the challenges head-on and managed to steer his country through the crisis resulting from economic asphyxiation. “Yes, We Can” call that Obama transformed the recession-hit USA into a nation that regained its past flourishing economic glory.

That is exactly how India needs to overcome the present challenges in economic, health, and other related key sectors, in the wake of the Covid-induced pandemic. “Yes, We Will” should be the guiding slogan for India amid the current crisis. Even though the Covid-driven crisis is assuming complicated proportions, India can and will overcome it. If Obama demonstrated that ‘success comes in cans, not in can’ts’, India can show “where there is a will, there’s a way.” India will use the present crisis as an opportunity to gain new heights on the horizon of development and growth. 

 Prime Minister Narendra Modi, whose “Yes We Will”approach fetched the country many laurels so far, is capable of rising to the occasion. There is no denying that so far his tenure is marked with so many achievements, however, there are challenges galore, with a strong negative perception also. What PM Modi has to do is to first break this negative perception and then use the crisis to consolidate everything that would go into the creation of a “New India” which he dreamt of and spoke a lot about.

Several hurdles to growth objectives have to be removed if PM Modi has to fulfil his vow to make India a $5 trillion economy by 2024. Strong leadership with massive willpower and positivity can lead to meaningful steps towards that goal. The only collective voice of “Yes We Will” from a 1.3 billion-strong nation can crush the crisis. When Obama took reins of America, the gloomy wind of economic recession coupled with negativity was sweeping across the country. Similarly, an atmosphere of despondency was prevailing in India when Narendra Modi formed the government in 2014. His dream and vision of “New India” did cut ice with the people. There have been several innovative and outstanding decisions and subsequent successful implementation on social and economic governance issues over the last seven years. Obama indeed converted the crisis into a much-needed opportunity to transform the US and handled the serious economic challenges, which cost millions of Americans their homes and jobs. The economic stimulus package announced by him helped the US tide over the crisis. One may recall that PM Modi had given the call to convert the Covid-induced crisis into an opportunity during the first wave of the pandemic.

Challenges could be the game-changer if tackled with determination, vision, and a positive attitude. The sectors which merit immediate and much-focused attention are related to what affects the lives of the masses. Strengthening the areas of governance will be a major weapon. With a performer government in place, as suggested by the track record so far, goals could be achievable. Economy, vaccination, health, education, unemployment, and negative perception are areas where the government faces major challenges that need to be taken care of on a priority basis to take the country out of its current situation. The economic slowdown turned into a contraction due to the pandemic. The deadly second wave caught the country off guard. Unfortunately, a pandemic does not come with a playbook, and India, like many other nations, has been learning and framing the rules as it progresses through this pandemic. The ongoing economic reforms in various sectors, including banking and agriculture, have faced a slow-down. There are reports about how the rural economy has suffered. Job losses on a massive scale have also been reported. The lockdown shut several businesses and threw people out of their jobs, pandemic and consequent lockdown have made the unemployment situation worse. As per the Centre for Monitoring Indian Economy (CMIE), in May, the rural unemployment rate in rural areas and cities reached 13.5% 17.4%, respectively. The national unemployment rate climbed to a new high of 14.7%. Certainly, the government will have to address this.

Now the question is what the government can do. What has been noticed in the past was PM Modi’s immense focus on microeconomics and this should be given fresh impetus. The bold push for encouraging market forces should be given, in view of the agrarian economy having been struck significantly by the pandemic. Empowering grassroots institutions could be effective. What is being suggested by many economic experts is the need to promote MSME down to rural areas to create jobs and stimulate economic growth. It is good that the government has made free ration available to the poor and those who lost jobs. The financial-economic package announced by Finance Minister Nirmala Sitharaman is the beginning of the long therapy that is needed for economic recovery. But many such financial vaccines are needed to bring India to the high table among world economic powerhouses. Another crucial step would be expediting and increasing loan disbursals under Mudra Yojana to help people set up their work and start-up to address unemployment. Under Mudra Yojana, Rs 29 crore loan sanctions, and Rs 15 lakh crore disbursals happened. This will also be of immense help in addressing the economic challenges.

Doubling the income of farmers will be of great help in improving the rural economy. It is a good move that PM Modi recently released over Rs 20,000 crore under the Pradhan Mantri Kisan Samman Nidhi (PM-Kisan) scheme. Since agriculture is the mainstay of the Indian economy, the government will have to focus on measures leading to an increase in agricultural production.

Rural infrastructure development is also one of the major components of what forms the very basis of improving the economy of the villages. Hence, there is a need to give a fresh fillip to the mission of electrifying all villages and homes, proper sanitation coverage to every village and tap connection to every single home in the city and village.

Education sector reform can also be a game-changer. Skill development, research, and innovation in science and technology are the three components to create a self-reliant India. It is a positive development that as part of reform in the education sector, the government’s focus is on connecting youth with education, knowledge, and skill to build Atmanirbhar Bharat.

How the health sector left a lot to be desired down to state levels also came to the fore during the second wave of Covid-19. That shifts the spotlight on health infrastructure in rural areas which needs to be further developed. Several hospital projects approved by the government for various districts and blocks should be completed soon. While discussing health sector enhancement, what is worth mentioning is affordable health care to the poor. Ayushman Bharat, also known as Modicare, helped the poor to some extent. But its reach to the people living in remotest areas should be ensured. It reminds one of Obamacare which was launched in 2010 to provide healthcare to those who can’t afford it. The objective of both is the same. Loopholes in the implementation of Modicare down to small rural pockets need to be plugged. The government is also reported to have stressed the need to make its coverage more extensive.   

Covid vaccination is an area where the focus should be greater. The manufacturing of vaccines has grown tremendously but vaccination hesitancy has to be dealt with. A majority of the population needs to be vaccinated at the earliest. The government claims that everyone will be vaccinated by December. But for this to happen, uninterrupted vaccination supply needs to be ensured. In what has come as a significant development underscoring the “Yes We Will” attitude, India has overtaken the US in the total number of Covid-19 vaccines administered so far with over 32.8 crore doses till 28 June 2021, while the US has logged 32.3 crore doses. What is more remarkable is that India began its vaccination drive on 16 January, 2021 more than a month after the US did on 14 December, 2020.

The perception challenge is one of the most baffling issues that the Modi government has to deal with. In the post-Covid scenario, a negative perception is being created about the government led by PM Modi. Questions are being raised over his competence. So PM Modi will have to lead from the front and infuse fresh spells of energy into all the schemes and projects. He has to show the willpower that yes, he can do and he will do. The government must step up efforts to be more proactive to engage with many public and civilian institutions to address the perception challenge resulting also from misinformation campaigns at national and international levels. PM Modi should bring some credible, talented, and professional faces with few seasoned capable people in the Cabinet. This perception is growing that the Cabinet lacks the desired talent and it must be given a fresh look. He knows the significance of perception in politics, the downfall of UPA-Congress is a story to remember. These are all daunting challenges for PM Modi. His track record on meeting difficult situations head-on is well known and that gives the nation confidence that he will face the challenges successfully.

One can go by some major works done by the Modi government. Banking the unbanked through the Jan Dhan Yojana was PM Modi’s innovative scheme under which 42 crore bank accounts were opened. GST was in the pipeline for 17 years before it became a major tax reform in 2017. Free distribution of the LPG cylinders through the Ujjwala Yojana is a milestone achievement. Official data show that Ujjwala Yojana accounts for over 70% growth in total domestic LPG connections in the country. The Swachh Bharat campaign is one of the big socio-political achievements of the Modi government. The toilet-construction programme under the Swachh Bharat campaign to make India an open-defecation free (ODF) country played a significant part. Even Obama lauded PM Modi’s innovative scheme of cleanliness.  

The government has done remarkably well on the strategic front. It was a big achievement for India to push China back from Doklam and Pangong Lake but still, the continued standoff at the LAC remains a big challenge for PM Modi and his strong leader image is facing the most critical time. However, under his leadership, India has renewed its effort to push for a permanent UNSC seat, by launching diplomatic efforts to remove the bottlenecks. Moreover, India plays an important role in Quadrilateral Security Dialogue (Quad), the grouping of four countries comprising the USA, Japan, Australia, and India, to counter China’s aggressive behaviour. We know the battle ahead will be long, but always remember that no matter what obstacles stand in our way, nothing can stand in the way of the power of millions of voices calling for change. No matter how onerous and gigantic the task of crushing the challenges might be, India will successfully do it with determination and collective efforts guided by a “Yes, We will do” attitude. It is this strong feeling and commitment that is going to rule everything. 

The writer is a political analyst and former Chairman, Andhra Pradesh Electronics Development Corporation.

Continue Reading

News Plus

Tushar Mehra & Mallika Puri, Co-Founders, Talentopedia on digitizing India’s freelance economy

Published

on

In an exclusive conversation, as a part of NewsX India A-List, Tushar Mehra and Mallika Puri, Co-Founders of Talentopedia spoke about their venture and the importance of focusing on digitizing India’s freelance economy.

In his inaugural comments, Tushar Mehra said, “At Talentopedia, our aim is to digitize the Indian freelance economy and we are doing that by giving an app to freelancers to help them better manage and grow their businesses. There are about 20 million freelancers in India, despite that big number most of freelancing happens offline. The best way to grow your business is not to sell your services on online markets, the best way to do it is to get work through first degree networks.”

Joining the conversation, Mallika said, “I have been a freelancer myself, I’ve worked in the industry for 5-6 years. I have personal experience with respect to being a freelancer and the challenges that we ourselves faced. I have tried to generate business as a single army through online platforms like freelancer.com, fiveearth and I could never generate any business because I would spend my prime hours of working on online platforms just to generate business.”

“I realised these platforms are not build for freelancers and people like myself, they are built for buyers where they come on board, generate as many leads, whereas, the freelancers are just on the platform to bid for those leads that are coming on board. But we are constantly cost-cut, facing a lot of challenges with various different freelancers who are verified by the platform. Thus, we land up with zero work. So, we’d rather switch to offline channels through first degree networks to get our own business and manage work. That’s how Talentopedia was born. So, that we could cater to the freelancers first, make them our focus, focus on their challenges and then cater to the buyers,” said Mallika.

Commenting on how Talentopedia is set apart to help freelancers apart from helping and creating a market place, she added,“Freelancers are our prime focus, they are our customers. We look at providing them business-management tools through our application that helps them to manage their business, generate leads and also grow their business.”

Explaining how Talentopedia works, Tushar stated, “We have an application on the google play store. We have a portfolio to upload projects freelancers have done, list their skills and services they sell. You can even input reviews you get from Facebook and other platforms. You can use our payment links to get easy payments like UPI (Unified Payments Interface). If you are working, getting clients offline through your first degrees, use our tool, manage those clients.”

Recalling their journey so far and future plans for Talentopedia, Puri said, “The journey has been absolutely amazing, we have around 100,000 freelancers on our Android app. In next five years, we want to see 10 million freelancers on our app. We want to create job opportunities for people who are looking at freelancing as their source of income in the pandemic.”

Towards the end, Tushar added, “If you’re a freelancer, this is the perfect time to join our platform and start growing because with the pandemic, a lot of start-ups have recently started to hire freelancers as they have realised the power of freelance.”

Continue Reading

News Plus

“Got a lot of opportunities from global companies after Atmanirbhar Bharat initiative”: Raj Chodankar, Chairman & CEO, Rrps4e Innovation Pvt Ltd

Published

on

Raj Chodankar

NewsX was recently joined by Raj Chodankar, Chairman & CEO, Rrps4e Innovation Pvt Ltd for a candid conversation with in its special series, NewsX India A-List.

Raj kickstarted the conversation by sharing insights from his experience in the electro-optics and healthcare industry. He said, “Our journey actually commenced in the year, 1990, that’s when we first ventured into doing some sort of business in India, but, the real assignment that we took up was in 2001 when we built up a very unique nano-machining facility, one of its kind in India, which catered specifically to the nuclear fraternity. So, that was the platform which took us into electro-optics because most of the optical elements that go into an electro-optics need the nano-machining setup and that’s where our journey began in 2010-12.”

He further added, “2014 was when we did a really good job for the Indian army as an outside partner with an Israeli company where we built all the optical elements for thermal imaging fire control system which gets mounted on a tank that is where we started getting recognition and our journey then progressed into trying to offer complete products rather than only components because there was a lot of value addition in the products.”

Throwing some light on their journey further, Raj expressed, “We got very prominent in 2018-19 and we were recognised well. 2020 was the time when we diversified into healthcare and it was only because of the challenges that the entire world was facing due to the pandemic. Because we had this thermal core technology which was the base, we used that thermal core technology to build thermal scanners for fever detection and then we use this thermal camera jointly with a Japanese company.”

Further talking about their collaborative projects in India and PM’s Atmanirbhar Bharat initiative, he said, “The era of making India Atmanirbhar is something that has always encouraged us and it continues to encourage us, or else life was very difficult for any entrepreneur to display his skills or innovation because at the end of the day we have to remember that if we are going into some niche technologies or products that go into Indian army, it is very important that these products go through some extensive trials and these trials by default can be anything between 1.5 to 3 years. The use of the Atmanirbhar plan under Make In India plan allowed us to buy technologies from global companies which made the buyers life much more simpler because  it was a proven technology, and, we could then display our skills because the global technology provider will allow us to build 50 per cent of those modules or components in India which we call as the indigenously designed, developed and manufactured in India, the IDDM category.”

Towards the end of conversation, Raj shared about their global tie-ups. He stated, “After this Atmanirbhar setup, we got a lot of opportunities from global companies that wanted to partner with somebody who is already a part of the ongoing technologies and which is where we got an upper hand over the others. Not that we are of corporate level, we are just getting into corporate zones. We are doing really well, our growth pattern is going into constant jumps.”

Continue Reading

News Plus

“We want everyone who follows and wears the brand to be love generation”: Founders of LoveGen

Founders of LoveGen, Bhavana Pandey, Nandita Mahtani and Dolly Sidhwani joined us on our special series and shared with us the idea behind the brand and their experiences.

Published

on

In an exclusive interview with NewsX India Alist, Founders of LoveGen, Bhavana Pandey, Nandita Mahtani and Dolly Sidhwani joined us on our special series. LoveGen is a brand that is uniquely tailored to meet the taste of an adventurous young generation who love to enjoy life and are interested in fashion, music and social media. LoveGen allows both young men and women to express themselves through clothes at every occasion.

Bhavana shared with us the idea behind the brand and said “All three of us have been friends for almost 20 years now. Fashion and marketing was something that was common between the three of us now, Nandita has been a designer for many years and Dolly had a brand and comes from an export background. I had a bit of marketing experience in fashion. Over many of our conversations, we realized that we don’t have fast fashion Indian brands which can be spread over all age groups and something comfortable.”

“That’s how the idea came about, and three of us were pretty much on the same page with it and we just decided to go for it and finally execution happened quite quickly,” added Bhavana.

Nandita Mahtani shared with us about the coming of the brand together and said “This is something that we all individually wanted to do and it was just about finding the right people to do it with because to start a new brand on this level is not an easy job. The three of us connected and our synergy was great and there was no turning back.”

Dolly Sidhwani talked to us about the thought behind the brand’s name and how LoveGen wants everyone to be loved. “We wanted to create a community about love, and there was a lot of hate around the world right now. We want everyone to be about love and everyone who follows us and wears the brand to be love generation,” said Dolly.

With so much prior experiences in the world of fashion and design, the founders elaborated on the USP of the brand and what sets it apart from others in the market. “Right now we are very focused on denims and what is really different about our brand is that it is very relaxed and at the same time it’s very glamorous and simple and interesting and it’s very cool and this is what sets it apart. A lot of our design elements come into play from our travels and whatever we carry back from our travels,” explained Dolly.

Renowned fashion designer Nandita shared her experiences working on that brand and said “LoveGen is a very affordable brand for everyone and it was very exciting to design. We have a lot more styles for every season and it’s more sort of interesting for the younger generations.” “We wanted more mass appeal so there was a lot of more scope,” added Nandita.

Throwing light on the journey of the brand in the wake of the pandemic and turbulent times, Bhavana told us “The last one and a half years, people have been through so much. We were fortunate because we have got partners who’ve invested in the brand. They were really supportive with us and the three of us been like very strong about it. We made sure to keep that our employees, our people are loved as much as we could. And we’ve kind of waded through this whole time together.”

Adding on how they are looking at the positive side, Bhavana further added “Our store in Malad, which is the Inorbit Mall has opened again and two more stores in Indore. We’re looking at opening more stores this year. We have started our brand online as well so we’re getting a lot of eyeballs on LoveGen.com.”

Talking about the emergence of digital marketing and sales, Dolly added “Social media is a huge part of our world but somehow I think there’s always going to be a balance between brick and mortar and digital. It is going to be a lot digital going forward but we are also planning to open 30 to 50 stores in the next two years.”

On an ending note, the founders of the brand advised their fans and viewers to never give up on dreams and follow their dreams and do what they love.

Continue Reading

News Plus

I never thought that I would ever going to be part of Hungama 2: Meezaan

Published

on

After making his debut with Sanjay Leela Bhansali’s Malaal, Actor Meezaan is all set to carve a space for himself in the hearts of audiences with Hungama 2 on Disney + Hotstar. The young hearthrob recently joined NewsX for an exclusive conversation as part of NewsX India A-List and spilled the beans on ‘behind-the-scenes’ hungama.

Reminiscing memories from the release of earlier ‘Hungama’, Meezan said, “I was actually 8 years old when the movie had come out in 2003. I remember going to Globus theatre in Bandra and watching it with a friend of mine and his mother. Ever since, even when the film comes on TV, we watch it till date. Sometimes while scrolling through the channels, suddenly we see Hungama, we always stop by for those iconic scenes. I never thought that i would ever going to be part of Hungama 2 about 18-19 years later. It has been a surreal experience for me. I am just grateful for this opportunity that has come and working with the people who are working on this film.”

On his full-fleged entry into the comedy genre, a genre in which his family has made a huge mark and their reaction to the script, Meezaan said, “The funny thing is that there was no script. There was just a name. I got a call saying, ‘Will you do a Priyadarshan film?’, and I said, ‘Ofcourse, yes’, without any hesitation because it is Priyan sir and it is honestly an honour to be working with him in my career. It is my second film and i am thrilled to get this opportunity and it has turned out to be amazing. I can’t wait for people to finally see the movie.”

Speaking about his experience of working with Filmmaker Priyadarshan and Actor Shilpa Shetty, Meezaan expressed, “It was a surreal feeling because there are too many things that are working in favour of this film, in terms of putting the film together. There is Priyadarshan coming back after a long time. There is the title, ‘Hungama’, which is a big franchise. The producers- Venus, Ratan ji had launched Shilpa Shetty and had done movies like Khiladi, Baazigar and so many other iconic films. You have the starcast, including Paresh ji, Rajpal sir, Johhny Lever, Ashutosh Rana- so many veteran actors. They are amazing at what they do. At the same time, there is Shilpa Shetty as well, who is making her comeback. There is also this song, ‘Chura Ke Dil Mera’, which is an iconic song and she is in the original song. I am with her in this remake. It’s too much that is going on. There is a lot of Hungama happening as it is. I am very happy. It has turned out to be wonderful.

“I am glad i made so many friends, including Shilpa ma’am. She is a wonderful person, full of life. I think she is aging in reverse. She is looking wonderful in the song. She has absolutely killed it. Till date, she has maintained the same energy, same dedication, same work ethic. I’m actually inspired by her and it was a lot of fun working with so many people, ” he added.

Sharing the response he has received for the song, ‘Chura Ke Dil Mera’, Meezaan said, “It has been great. People have loved it. They showered their love, whether through social media, YouTube and stuff like that. It has been great. I have no complaints and it is still going on. There is a lot of Hungama still to be done. We’re taking it one step at a time. There is one more song that came out after, which is called, ‘Chintan’. That song also has received a lot of love from people everywhere. Now we have other song coming out, which is the Hungama title track. It is going to be wonderful and i am excited for everyone to see the whole film as it is.”

Check out the entire interview on NewsX YouTube: 

Continue Reading

Trending